Cystic Fibrosis Ireland

Cystic Fibrosis Ireland is rated 3 out of 5 in the category nonprofit organization management. Read and write reviews about Cystic Fibrosis Ireland. Cystic Fibrosis Ireland is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. We are supported by fundraising and voluntary contributions and are solely concerned with the well-being of people with Cystic Fibrosis. What is Cystic Fibrosis? •Cystic fibrosis (CF) is an inherited chronic disease that primarily affects the lungs and digestive system of about 1200 children and adults in the Ireland (70,000 worldwide). Ireland has the highest proportion of people with CF in the world. Is there a cure? There is no cure for Cystic Fibrosis, but medical research is ongoing in the hope of finding such a cure. Meanwhile, it is necessary to fund the services required to give children and adults with CF some hope of managing their condition CFI Provides: •Funding towards new Cystic Fibrosis units around the country, including dedicated in-patient, day care and out-patient facilities •Advocacy to shape government policy, for example, through the groundbreaking ‘Pollock Report’ on Cystic Fibrosis services and campaigning to improve lung transplantation rates in Ireland •Funding for medical and scientific research aimed at understanding, managing and treating Cystic Fibrosis •Advice, information and advocacy services •Exercise, Transplant and Fertility Grants •Regular information updates on new treatments and developments in Cystic Fibrosis